Ellie Mae’s Legacy was created to raise awareness, funds and the research profile of mitochondrial disease. 

Ellie Mae lost her short life to mitochondrial disease (Mito) in 2018 when she was only 9 months old. In Ellie’s memory, her family want to do what they can to raise awareness of this life-limiting disease. They also want to support Mito research, to hopefully find better treatment options for those people with mitochondrial disease and their families. 

In this website, you can:

• Read about Ellie – our Warrior princess’ story to learn more about how mitochondrial disease presents in children,
• Read more about what Mitochondrial disease is,
• See how you can support our plans to continue Ellie Mae’s Legacy  through awareness raising, fundraising and research.

Please feel free to contact us.